Parent Support Groups
National Urea Cycle Disorders Foundation
(NUCDF)
This North American, non-profit organization was set up in 1988 by a group of
parents whose children were affected with urea cycle disorders. The foundation
is dedicated to the identification and treatment of urea cycle disorders and
is a primary resource for information and education. NUCDF also stimulates and
funds research in this area of medicine. Membership is open to both the public
and medical professionals.
The NUCDF has a Web site at the following address: www.nucdf.org
Diseases
Children Living
with MetaBolic Diseases (CLIMB)
This organization, which is based in the United Kingdom, provides information,
advice and support to families, caregivers and support groups for over 550 metabolic
diseases. Previously known as the Research Trust For Metabolic Diseases
in Children.
Their Web site may be found at the following address:
National Organization of Rare Disorders
www.rarediseases.org
Urea Cycle Disorders Consortium of the Rare Diseases Clinical Research Network www.rarediseasesnetwork.org